am writing this post because ADHD UK’s email systems appear not to be functioning and I need to reach you urgently. I have attempted to contact Henry Shelford directly but the emails bounced.
I am a 27-year-old in Nuneaton, CV11 5LT — within the Coventry and Warwickshire ICB area that ADHD UK is currently challenging legally. I believe my case provides documented, evidenced, real-world harm caused directly by the Right to Choose suspension, which may be useful to your legal proceedings.
My situation in brief:
I have confirmed severe combined ADHD (9/9 inattention, 9/9 hyperactivity-impulsivity, DSM-5-TR, most recently confirmed by Dr Christopher Smith MRCPsych, Mentalwell, April 2026). I was prescribed 60mg Amfexa (dexamfetamine) by CWPT ADHD Services. On that medication combined with Baclofen I achieved approximately 80% restoration of normal gait — because in my case, due to a co-occurring neurological movement disorder (suspected SPG7 Hereditary Spastic Paraplegia, genetic testing ongoing), this medication is functionally essential for motor control, not just cognition.
In December 2025, CWPT ADHD Services discharged me during acute medication withdrawal, with no safeguarding, no down-titration, and no reinitiation plan — despite a formally recorded HIGH risk rating four months earlier.
What the Right to Choose suspension did to me specifically:
I cannot access an alternative provider because CWICB suspended Right to Choose referrals for adults over 25. I am 27. The service that caused the harm is the only accessible route to the remedy. This is not a theoretical closed loop — it is why I have been without medication for over five months.
The consequences of that closed loop:
Complete housebound status for five months
Achilles tendon surgery in May 2026, caused by unmanaged spasticity from medication withdrawal
Two documented stair falls caused by involuntary spasticity
Documented suicidal ideation (recorded by a consultant psychiatrist)
Active clinical negligence proceedings with Slater and Gordon
GMC fitness to practise referrals against two named doctors
Formal complaints active with three NHS Trusts, the ICB, CQC, PHSO, and both local MPs
NHS England formal case reference: 2605-2330592 (opened this week)
CQC case reference: CAS-1397509-V0R2B1
Judicial review via Form N463 being actively pursued — a qualified solicitor has confirmed the emergency exception to JR pre-action protocol applies
What I am requesting from ADHD UK:
Confirmation that my case can be referenced as a documented example in your legal proceedings against CWICB
Whether ADHD UK can support or co-ordinate a parliamentary data request I have initiated through my MP Jodie Gosling — specifically requesting CWPT ADHD service discharge rates, complaint volumes, waiting times, and whether an Equality Act impact assessment was conducted before the Right to Choose suspension
Any advice on routes I have not yet pursued
Supporting documentation:
Full evidence archive (all NHS correspondence, specialist letters, complaint documents):
The CQC’s own February 2024 inspection rated three CWPT services as requires improvement. If the parliamentary data request produces discharge and complaint metrics consistent with my experience, that is statistical evidence of systemic failure — not just one patient’s account.
I am available to provide any further information, evidence, or testimony that would be useful to your case.
Matthew Bayliss