Hi, im feeling stuck between waiting assessment and needing to connect with others. I know I can’t be alone in this place? I live in Wales so Right to choose isnt available and Shared care is scarce. I feel I can’t connect until I know for sure of the diagnoses even though its undoubtable in my mind. I’m nervous of private practices plus NHS Wales won’t accept the results anyway. I feel I won’t be believed or taken seriously by anyone without an NHS diagnosis, and that even they wint believe me, its so complex. Is this normal/ reasonable? I feel so lost at times and then so pathetic! Are there ‘waiting inbetween’ support groups available? Thank you ![]()
Hi, welcome to the forum!
You are so welcome to join in on support groups without a diagnosis, and being on the assessment waiting process. You’re absolutely not alone in this position, and although there isn’t an official ‘waiting in between’ group, I’m sure other’s will gladly have you join the conversations ![]()
Below is the link to the support groups where you’ll likely find others who are currently, or have previously been in the same position. At the very least, many will have been through various waiting times, the same feeling of the ‘in between’, and I’m sure they’d be willing to give encouragement and guidance based on their own experiences.
welcome to the community and thanks again for sharing. Hopefully others will also see this on the forum here too and connect ![]()
Thanks for this Joe, I will check it out. Much appreciated ![]()